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We’ve gathered some of the best resources available to help you involve patients, service users, carers and family members in your research. Find a range of resources below to get started.

Whether you’re just getting started with involving patients and the public in your work, or if you’re looking for some new techniques, there are some great resources out there. We’ve pulled together some of the best available resources onto this page to help you involve patients, service users, carers and family members in your research.

Resources for researchers

Getting started

Involving people in your research for the first time? Then the best place to start is the NIHR website. This has guidance for researchers new to public involvement in research.

Finance

This can be one of the hardest aspects of planning for involvement – how much do you pay people? How do you effectively budget for involvement in a three-year project?

Meetings and workshops

If this is your first time involving a patient or member of the public in your work before, you may need some help with the practicalities

Communication

Involving patients and the public in disseminating your research allows you to access ‘grassroots’ audiences that you otherwise may not know about and is appreciated by funding bodies.

Recruitment

Sooner or later you will want to advertise your workshop or project, and possibly even recruit lay people to a steering committee.

ARC South West’s Patient and Public Involvement and Engagement Strategy

Our involvement and engagement strategy was co-produced by people in ARC South West: public collaborators, researchers, the management team and the patient and public involvement team

ARC South West’s Patient and Public Involvement and Engagement Code of Practice

The University of Exeter’s Engaged Health Research Group has developed a Code of Practice, which details the principles that the ARC South West PPIE team uphold in our practice when working with researchers and public collaborators on research